The daily battles
As each day goes by, I realise more and more just how much I used to take for granted. I never once thought twice about the fact that I could cook my own meals, come and go freely from my house, dress...
View ArticleLast nights Dystonia antics
I have never been a flexible person. The only part of my body that is flexible is my arms and wrists. However last night the little dystonia alien decided to show me just what it could make my body do....
View ArticleNeurologist Visit
Yesterday I went up to London to have my first consultation with my new Neurologist. Despite having read a ton of positive patient reviews of him I was still very nervous. It turned out I had no reason...
View ArticleThe Claw
My dystonia is often referred to as the alien by family and friends. For those of you who have seen Toy Story, you will be able to understand how amusing the following was. Over the last few evenings...
View ArticleWheelchairs and me
After spending the last couple of weeks in a wheelchair, I have decided that I am not meant to be in one…EVER! I simple do not trust anyone pushing me. Now I know that no-one was ‘meant’ to be in a...
View ArticleMusings on my upcoming treatment
Back in 2009 I was admitted into my local hospital with Complex Regional Pain Syndrome in my right leg. I stayed in hospital for a total of six months and still suffered with the condition for a few...
View ArticleCounting my lucky stars
This last week, has for me, been full of thoughts to chew on. This week, there has been many programmes on for Stand up to Cancer, all of them heart wrenching yet inspirational.These people have to...
View ArticleWaiting Lists
In the post today I had a follow up letter from my neurologist. He is still hoping to get me admitted into my local hospital for treatment, however if the hospital does not want to take me on, he will...
View ArticleDystonia Alien Plays Games
Tonight the dystonia alien decided to show me what else it could do with my hand. Normally when my spasms last for a long period of time we end up trying to force them to release. However this...
View ArticleDetermination!
So I know Dystonia is thought of by the medical society as incurable but I have to disagree. Personally I think that the medical society know so little about Dystonia, that to say it is incurable is...
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